ALS Talk

I’m a live-in caretaker for a man afflicted with this horrific mystery - ALS. He was originally diagnosed with Spinal Stenosis, Cervical Myopathy, Chronic EBV, Chronic Lymes and on top of all that he has a legitamate Mycobacterium Marinum infection in his right wrist (fusing his hand into a fist). Come to find out 18 months into the problems, a nuerologist who made no diagnosis to him as a patient tells his brother that he believes it to be ALS. After another 3 months of frantic searching for social help to get him medical attention (having been totally financially ruined by all the previous attempts to cure the Lymes/Cervical Myopathy/Spinal Stenosis), we finally get hooked up w/ the MDA and they referred us to the local Las Vegas ALS clinic. They’re telling me he’s in end-stage, and are doing everything to help him to be as comfortable as possible and accept the inevitable - COMPLETELY UNDERMINING MY ATTEMPTS TO HELP HIM FIGHT AND HAVE HOPE. Read the rest of this entry »

My father passed away on 9/3/07 after a short battle with ALS. It has taken some time to get to the point where I am ready to talk about it. Read the rest of this entry »

im 16 i started noticing about a month ago it was hard for me to speak clearly as it was hard to swollow. i happened to see something on als and right after that my muscles seem to twitch from time to time and i feel anxious and i cant sleep. i also have felt muscle weakness but i am currently taking prozac for depression and penicillion for jinjivitus i dont know if that would have anything to do with it but i need some answers because i feel like i am missing out in my life because i am so worried i am suffering from als at only the age of 16 please help.

Hi everyone,

My name is Taylor Fleming and I am a high school student. Every year our group does a big event to raise money for ALS research. Over the past 3 years we have raised over $472,000 for research. Read the rest of this entry »

Anybody knows what can be the possible causes of burning hands and feet. Read the rest of this entry »

We’ve re-opened ALS Talk after a long hiatus. We’ll be using WordPress to manage the message board. I’m happy with this system and feel it will provide the right set of functions to make this a meaningful and useful community.

Since this is new, we’re learning as we move along. So expect that at times things may not function properly or make much sense. But we have to start somewhere and today is a good a time as any other.

If you have any questions or suggestions please speak up.

Aloha from Hawaii!